For Autistic Children and Adults, their Caregivers and Health Providers

COVID-19 Vaccine & Pandemic Resources

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COVID-19 Vaccine Information

COVID-19 Infection Information

COVID-19 Vaccine Booster

Vaccine Facts

  • People with autism have higher rates of underlying health conditions, and those conditions put them at risk for severe disease if they get COVID.

  • Moderately or severely immunocompromised people have different recommendations for COVID-19 vaccines, including boosters.

  • If you are moderately or severely immunocompromised (have a weakened immune system), you are at increased risk of severe COVID-19 illness and death. Additionally, your immune response to COVID-19 vaccination may not be as strong as in people who are not immunocompromised.

  • You can self-attest to your moderately or severely immunocompromised status, which means you do not need any documentation of your status to receive the COVID-19 vaccine or booster doses wherever they are offered.

  • Autistic people who live in residential settings with many other people, which we call congregate facilities, are more likely to contract COVID.

  • Some states have found people with intellectual disabilities, some of whom also have autism, may have a greater risk of dying from COVID if they become infected.

  • People who need direct support also face greater exposure risk because service providers often see multiple people in a day or a week, and close contact is unavoidable.

  • Please talk with your healthcare provider about your health conditions, living situation, their advice about the vaccination, and what is best for you.

  • Because of what we know about how COVID affects people with disabilities, including autism, getting a vaccine is the best way to protect yourself and your loved ones from severe complications from COVID.

  • COVID-19 vaccines are safe and effective. Research shows that it is also safe for children to get the COVID-19 vaccine and other vaccines on the same day.

  • Everyone 6 months and older is now eligible to get a free COVID-19 vaccination.

  • Common side effects are pain, redness, and swelling in the arm where you got your shot. Tiredness, headache, muscle pain, fever, and nausea are sometimes also experienced.

  • COVID-19 vaccination helps protect people from getting COVID-19. Some people have side effects from the vaccine, typical signs that their body is building protection. These side effects may affect their ability to do daily activities, but they should go away in a few days. Some people have no side effects, and allergic reactions are rare.

  • To reduce pain where the shot is, try applying a clean, cool, wet washcloth over the area and use or exercise your arm to reduce soreness. Drink plenty of fluids and dress lightly to minimize discomfort from fever.

  • Side effects can affect you or your child’s ability to do daily activities, but they should go away in a few days.

  • In most cases, discomfort from pain or fever is a typical sign that the body is building protection.

Testing Types

Viral tests look for a current infection with SARS-CoV-2, the virus that causes COVID-19, by testing specimens from your nose or mouth. There are two main types of viral tests: nucleic acid amplification tests (NAATs) and antigen tests. In certain circumstances, one test type may be recommended over the other. All tests should be performed following the FDA’s requirements.

  • NAATs, such as PCR-based tests, are most often performed in a laboratory. They are typically the most reliable tests for people with or without symptoms. These tests detect viral genetic material, which may stay in your body for up to 90 days after you test positive. Therefore, you should not use a NAAT if you have tested positive in the last 90 days.

  • Antigen tests* are rapid tests that produce results in 15-30 minutes. They are less reliable than NAATs, especially for people who do not have symptoms. A single negative antigen test result does not rule out infection. To best detect infection, a negative antigen test should be repeated at least 48 hours apart (known as serial testing). Sometimes, a follow-up NAAT may be recommended to confirm an antigen test result.

Self-tests, or at-home tests, are usually antigen tests that can be taken anywhere without going to a specific testing site. Follow FDA and manufacturer’s instructions, including the number of times you may need to test. Multiple negative test results increase the confidence that you are not infected with the virus that causes COVID-19.

  • You can order free self-test kits at COVIDtests.gov or purchase tests online, in pharmacies, and in retail stores.

  • You can also visit the FDA’s website to see a list of authorized tests.

  • Negative results do not rule out SARS-CoV-2 infection and should not be used as the sole basis for treatment or patient management decisions, including infection control decisions. Please see FDA guidance on the use of at-home COVID-19 antigen tests.

Precautions & Isolation

If you have COVID-19, you can spread the virus to others. Precautions you can take to prevent spreading it are isolation, masking, and avoiding contact with people who are at high risk of getting very sick. Isolation is used to separate people with confirmed or suspected COVID-19 from those without.

Regardless of vaccination status, you should isolate yourself from others when you have COVID-19.

You should also isolate if you are sick and suspect you have COVID-19 but do not yet have test results. If your results are positive, follow the full isolation recommendations below. If your results are negative, you can end your isolation.

If You Test NEGATIVE

You can end your isolation

If You Test POSITIVE

Follow the full isolation recommendations below. 

Isolation Recommendations

When you have COVID-19, isolation is counted in days, as follows:

If You Had No Symptoms

Day 0 is the day you were tested (not the day you received your positive test result)

  • Day 1 is the first full day following the day you were tested

  • If you develop symptoms within 10 days of when you were tested, the clock restarts at day 0 on the day of symptom onset

If You Had Symptoms

  • Day 0 of isolation is the day of symptom onset, regardless of when you tested positive

  • Day 1 is the first full day after the day your symptoms started isolation

  • If you test positive for COVID-19, stay home for at least 5 days and isolate from others in your home.

You are likely most infectious during these first 5 days.

Removing Your Mask

After you have ended isolation when you are feeling better (no fever without the use of fever-reducing medications and symptoms improving):

  • Wear your mask through day 10, or

  • If you have access to antigen tests, you should consider using them. With two sequential negative tests 48 hours apart, you may remove your mask sooner than day 10.

Note: If your antigen test results (1) are positive, you may still be infectious. You should continue wearing a mask and wait at least 48 hours before taking another test. Continue taking antigen tests at least 48 hours apart until you have two sequential negative results. This may mean you must continue wearing a mask and testing beyond day 10.

After you have ended isolation, if your COVID-19 symptoms recur or worsen, restart your isolation on day 0. Talk to a healthcare provider if you have questions about your symptoms or when to end isolation.

(1) As noted in the Food and Drug Administration labeling for authorized over-the-counter antigen tests, negative test results do not rule out SARS-CoV-2 infection and should not be used as the sole basis for treatment or patient management decisions, including infection control decisions.

Frequently Asked Questions

Mental Health National Organizations

American Psychiatric Association – COVID-19 Resources
Mental Health Association – Treatment and Services
Mental Health Association – COVID-19 Information and Resources
MentalHealth.gov – Support and Treatment Services
American Psychiatric Association – Support and Resources for Patients and Families
American Psychology Association – Help for Emotional Crisis
National Alliance of Mental Illness – Mental Health Resources
National Institute of Mental Health – Mental Health Resources Including Federal Agencies
CDC – Coping with Stress During the Pandemic
American Psychology Association – Both Local and National Resources

Resources for Families Affected by the Pandemic

OSDH – COVID-19 Resources for Parents and Caregivers
USDA – National COVID-19 Resource for Individuals and Families
OK Family Network – Local COVID-19 Resource
Family and Children’s Services – Tulsa-Based Emotional Support
Youth.gov – National COVID-19 Resources for Families
Administration for Children and Families – National COVID-19 Resources
USA.gov – Financial Assistance for families affected by COVID-19
Benefits.gov – Financial Assistance for individuals and families affected by COVID-19
Healthy Children – COVID-19 Resources
Child Mind Institute – Support for Kids’ Mental Health during the COVID-19 Pandemic

Recursos de la vacuna COVID-19